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Author Archives: Jennifer Handt

Jennifer Handt of Darien, Connecticut, is a mother of a child with Duchenne muscular dystrophy. She wrote this for InsideSources.com.

Posted inPolitics

An Unwelcome Ticking Clock in Rare Disease

by Marit Sivertson and Jennifer Handt September 7, 2023September 7, 2023

On World Duchenne Awareness Day (September 7), we finally have reasons to celebrate. We have 6-year-old Hiram, who rushed through rounds of testing this summer to ensure he spent his last day as a 5-year-old at Children’s National Hospital. We have 6-year-old Kellan, who also recently won his race against time with only days to […]

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